Latest News | Henry Schueler 41&9 Foundation

5th Annual Fundraiser at Wrigley Field

On Monday July 16, 2012, In Events, By admin

On Sunday, July 29, 2012 the Henry Schueler 41 & 9 Foundation will host its 5th Annual fund raiser at Wrigley Field as the Cubs take on the World Champion, St. Louis Cardinals. The game is scheduled to begin at 1:20 pm. Tickets for the benefit will be specially priced this year at $100* for [...]

On Sunday, July 29, 2012 the Henry Schueler 41 & 9 Foundation will host its 5th Annual fund raiser at Wrigley Field as the Cubs take on the World Champion, St. Louis Cardinals. The game is scheduled to begin at 1:20 pm. Tickets for the benefit will be specially priced this year at $100* for all ticket purchasers and will again include round trip bus transportation from the Schueler house (11:00 am departure) to Wrigley Field before the game, and back to the Schueler’s after the game. Attendees may wear past years green Foundation t-shirt if you so desire or order a new T-shirt for $10 a piece. Our group will again be allowed early entry to the bleachers.

*The Face value of the bleacher seat for this game is 87.36/ticket including all taxes. We do not receive a discount on the ticket price.

Reserve your tickets and/or t-shirts now by emailing connect@henryschueler.org. Please include the number of tickets requested including the number of adult and children tickets. If t-shirts are ordered, please specify children or adult size: Kids Small-Med-L-XL or Adult S-M-L-XL-XXL. Please include an additional $10 for each shirt purchased. All email orders requesting shirts will be considered final as of July 17, 2012 in order to ensure that all shirts will be printed in time for the game.
T-shirts can be picked up at the St Mary of the Woods parking lot on Saturday, July 28 from 10:00 am-12:00 pm. All payments must be received by July 28, 2012 and should be made payable to the Henry Schueler 41 & 9 Foundation. Please email any questions to connect@henryschueler.org.

Enjoy a day of Sunshine, Friendship and Remembrance at Hank’s Favorite spot. We are making a difference in Hank’s memory!

Larry Potash’s WGN Morning News Segment Features Coast2Coast4ACure! Riders

On Wednesday May 9, 2012, In Uncategorized, By admin

See a clip from the Monday, May 7 broadcast of the WGN Morning News with Larry Potash that features a segment on the upcoming Coast2Coast4ACure bike ride. This clips features some of the riders including Henry’s father Matt Schueler. Watch

4/24 Cubs Radio Broadcast mentions Coast2Coast4ACure

On Wednesday April 25, 2012, In Events, By admin

Cubs Radio Broadcaster Pat Hughes on a tip from Lou Manfredini talks about the Coast2Coast4ACure ride for the Henry Schueler 41 & 9 Foundation on the April 24th against the Cardinals. Listen

Tagged with: 41&9 Foundation • Bike Ride • chicago cubs • Coast2Coast4ACure • cubs • henry schueler

Maifest Benefit Party

On Tuesday March 27, 2012, In Events, By admin

On May 12, 2012 we will be celebrating a German style Maifest as a kickoff to the Coast2Coast4ACure bike ride. The Maifest kickoff event will be held at Leader Bar Chicago on 300 w. Irving Park Road (Irving & Sacremento) from 7-10pm. Tickets to the benefit party are presale only and it includes German brats, [...]

On May 12, 2012 we will be celebrating a German style Maifest as a kickoff to the Coast2Coast4ACure bike ride. The Maifest kickoff event will be held at Leader Bar Chicago on 300 w. Irving Park Road (Irving & Sacremento) from 7-10pm. Tickets to the benefit party are presale only and it includes German brats, pretzels, German beer, music, and “Gemutlichkeit.” Tickets can be purchased from any Foundation Board member. If you have any questions, feel free to email the Foundation at hsf419@sbcglobal.net

Tagged with: 41&9 Foundation • charity • chicago • fundraiser • henry schueler • Maifest

Coast2Coast4ACure

On Tuesday March 27, 2012, In Events, By admin

Members of the Chicago Fire Department’s Charitable Foundation, Ignite the Spirit,(Ignitethespirit.org) in partnership with the Henry Schueler 41 & 9 Foundation (Henryschueler.org) will be riding their bicycles across the country this spring to raise money to fight pediatric cancer and the infections children can contract when undergoing treatment. The ride is called the Coast2Coast4ACure ( [...]

Members of the Chicago Fire Department’s Charitable Foundation, Ignite the Spirit,(Ignitethespirit.org) in partnership with the Henry Schueler 41 & 9 Foundation (Henryschueler.org) will be riding their bicycles across the country this spring to raise money to fight pediatric cancer and the infections children can contract when undergoing treatment. The ride is called the Coast2Coast4ACure ( Facebook/Website Coast2Coast4ACure.com) and will start in Torrance, California on May 20 and end near Myrtle Beach, SC on May 31. The group of 8-10 riders and 4-5 support personnel, composed of Chicago firemen, paramedics and members of the HSF 41 & 9 Foundation, including Jim Boyle and me will ride approximately 230 miles per day in a relay style team.

This is the third year and third Bike Ride of this unique partnership between the Chicago Fire Department and the Henry Schueler Foundation which has raised over $100,000 for cancer related research. Virtually all the money raised by the Henry Schueler Foundation has been targeted for cancer or infection related research. The Foundation just published (Oxford Press) a Supplement to the Clinical Infectious Disease Journal entitled “Advances Against Mucormycosis: A Tribute to the Memory and Courage of Hank Schueler” The Supplement is also now on-line and can be viewed for free to any who want to visit cid.oxfordjournals.org. I urge you to visit this site to see what you have helped do for others.

Likewise, we have funded the first Genomic Analysis of Hypodiploid Acute Lymphoblastic Leukemia (“HALL”) led by Dr Charles Mullighan from St. Jude Children’s Research Hospital and Dr Steven Hunger from Denver Children’s Hospital. This project led to a gene analysis of samples from patients with three different forms of this rare leukemia to confirm genetic differences that could lead to new treatments. The promising results of their research, dedicated to Hank’s memory, has been submitted to the journal Nature Genetics for publication. Your generosity has helped make this ground breaking research possible.

Tagged with: Bike Ride • henry schueler

St. Pats High School Remembers Hank

On Tuesday May 17, 2011, In Events, By Maxx

Save the date! This weekend …

Tagged with: baseball • henry schueler

Stay Strong!

On Monday August 30, 2010, In Foundation, By Maxx

Many have asked me about the “Stay Strong” wording on the back of this year’s Foundation t-shirt. I have written about it in the past but am happy to share the story behind it with you again. In October 2007, after Hank made a miraculous-like recovery from the initial onslaught of the fungal infection, he [...]

Many have asked me about the “Stay Strong” wording on the back of this year’s Foundation t-shirt. I have written about it in the past but am happy to share the story behind it with you again.

In October 2007, after Hank made a miraculous-like recovery from the initial onslaught of the fungal infection, he came home for a few days. You may remember the orange ribbons around the neighborhood and his appearance at the SMOW football playoff game. He was still very sick as his leukemia had resurfaced again and he was weak. Often he would sleep on the coach in the family room in front of the fire rather than go upstairs. I would sleep on the floor next to him and Uncle Joe would sleep on the other couch. Susan would get whatever sleep she could upstairs. We kept a urinal next to the couch so he did not have to walk to the bathroom. I woke up one night and looked at Hank sleeping on the couch, bathed in the light from the logs in the fireplace. His face was puffy from medications, his fluid pump was humming and he had no hair. Our beautiful boy was struggling with a sickness that he should not have had to face for 60 more years. I cried silently as I looked at him wondering how and why this happened to my son. He awoke shortly thereafter and had to use the urinal. Big Joe awoke as well to see if we needed help. Hank and I stood together as I braced him up so he could pee and he must have seen the tears still on my face. After he finished we continued standing, facing each other, leaning my forehead onto his fevered forehead. And he said to me: “Dad, stay strong. We are going to beat this thing.” Hank was now the consoler, a young man who simply refused to quit. I could never have a more heartbreaking or prouder moment as a parent. (Read More…)

Tagged with: 41&9 Foundation • anti-fungal therapy • bone marrow transplant • children • football playoff game • fungal infection • henry schueler • hypodiploid • leukemia • mucormycosis • orange ribbons • pneumonia • rhinocerebral • sinusitis • zygomycosis

17 Birthday Wishes for Hank

On Wednesday August 25, 2010, In Events, Foundation, By Maxx

17 Birthday Wishes for Hank on the Eve of his 17th Birthday 1. May your name never be forgotten by those who knew you 2. May the memories of your life never be distant from our minds 3. May we always remember the joy your life brought to us 4. May your love for your [...]

17 Birthday Wishes for Hank on the Eve of his 17th Birthday

1. May your name never be forgotten by those who knew you
2. May the memories of your life never be distant from our minds
3. May we always remember the joy your life brought to us
4. May your love for your family inspire us all to be better parents, children and siblings
5. May your passion for life remind us how much we have not experienced
6. May your gift of friendship be shared with those who need it most (more…)

Tagged with: 41&9 Foundation • anti-fungal therapy • birthday wishes • children • gift of friendship • heaven 17 • henry schueler • pneumonia • rhinocerebral • sinusitis • zygomycosis

A day for learning… and Thanks

On Wednesday August 25, 2010, In Events, Foundation, Zygomycosis research, By Maxx

We are so proud to announce that the Henry Schueler 41 & 9 Foundation Forum on Zygomycosis was held here in Chicago on January 19-20, 2010. The Forum was Chaired by Dr Thomas Walsh, head of the Pediatric Infectious Disease Department at the National Institute of Health. Present were physicians and research scientists from MD [...]

We are so proud to announce that the Henry Schueler 41 & 9 Foundation Forum on Zygomycosis was held here in Chicago on January 19-20, 2010. The Forum was Chaired by Dr Thomas Walsh, head of the Pediatric Infectious Disease Department at the National Institute of Health. Present were physicians and research scientists from MD Anderson Cancer Center in Houston, Tx, UCLA’s Geffen School of Medicine, the NIH as well as experts from Greece and France. It was an amazing collection of the some of the world’s leading experts who came here to hear Hank’s story and to discuss better ways to prevent, diagnose and treat the deadly fungal infections, like Zygomycosis, that attack cancer patients like Hank and others, when their host defenses are compromised by treatment or other immune compromise. (more…)

Tagged with: children • deadly fungal infections • hypodiploid • immune compromise • leukemia • md anderson cancer • md anderson cancer center • mucormycosis • pediatric infectious disease • pneumonia • rhinocerebral • world class experts • zygomycosis

Moving A Dresser

On Monday February 15, 2010, In Events, Foundation, By Maxx

Presidents Day for me did not involve the honoring of our forefathers as perhaps it should have. For some reason it did involve a bit of spring cleaning despite the 6 more weeks of winter promised by Punxsutawney Phil. Maybe spring cleaning is not completely accurate since it also involved putting some Christmas decorations away [...]

Presidents Day for me did not involve the honoring of our forefathers as perhaps it should have. For some reason it did involve a bit of spring cleaning despite the 6 more weeks of winter promised by Punxsutawney Phil. Maybe spring cleaning is not completely accurate since it also involved putting some Christmas decorations away at long last. I had another special project for Monday in Joe’s room. For a while we have been talking about putting a desk in his room so he has a comfortable place to study. Simple perhaps except that Joe had a roommate for almost 8 years and his room as you might expect, was more Hank’s than Joe’s. For sure, we had painted it and decorated it for Joe since Hank died. But the room still carries the memories of his older brother, the aura of his personality, the birthplace of his nightly dreams. And it still holds his dresser. (more…)

Tagged with: anti-fungal therapy • baseball cards • children • christmas decorations • hypodiploid • leukemia • mucormycosis • nightly dreams • pneumonia • presidents day • punxsutawney phil • rhinocerebral • sinusitis • zygomycosis

Henry Schueler 41&9 Foundation

Founded in loving memory of Henry Schueler